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Post by hyperstarre on Dec 16, 2008 3:44:25 GMT -5
i'm late, but i'm glad you're home!
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Post by savemeimdtba on Dec 24, 2008 21:21:39 GMT -5
Guys, I have lab results coming up on Friday - please send good vibes and prayers that things are doing better and maybe i can do less dialysis or even get off it completely for a while. Thanks <3 I hope you guys have a Merry Christmas - and I'll let you know how it goes.
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Post by cayters on Dec 25, 2008 11:01:54 GMT -5
ooo, good luck love. <3
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Post by katelyn on Dec 27, 2008 1:39:42 GMT -5
kristi any results? good news i hope?
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Post by savemeimdtba on Dec 27, 2008 8:59:48 GMT -5
Nope... didn't work out - the blood work hasn't changed. So, I've pretty much lost all hope that I'm getting off this anytime soon. Blog has been updated - yournextdisaster.sweet-catastrophe.com/ |
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Post by klein on Dec 27, 2008 23:03:05 GMT -5
im sorry to hear that... im sending you some good vibes. i hope you get better soon!
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Post by Yuliya on Dec 31, 2008 16:05:37 GMT -5
Kristi, I'm so sorry to hear that things haven't work out yet. I really hope things turn around for you in the new year!!
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Post by liz4600 on Jan 1, 2009 12:43:35 GMT -5
that sucks, I'm sorry things aren't better but I'm keeping you in my thoughts & prayers and I'm sending all my good vibes your way  |
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Post by savemeimdtba on Apr 8, 2009 10:26:40 GMT -5
I figured I should update now that I'm doing better. I did hemodialysis (where they clean your blood and give it back to you) for three months and that was pretty horrible. I was sick all the time and severely anemic. Finally got the surgery to do the other kind of dialysis (Peritoneal Dialysis) in February and started doing that about a month ago. I am feeling MUCH better! I have energy again and want to do things - going to see LH in June! I do this 4 times a day (it takes about 30 minutes) - you put fluid in your stomach through a catheter and it pulls all the toxins and excess water and then you drain and repeat. Starting on April 20th I can do it at night (meaning a machine will do it all for me and I can have my days free!). I had iron infusion for three weeks and that helped a lot in the feeling better as well. Still looking into the transplant but it will be a while... right now, I'm just happy to be feeling semi-normal again. Hopefully, I'll be able to go back to work in August for the new school year. And there's your update  |
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Post by cayters on Apr 8, 2009 10:42:42 GMT -5
yay! |
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Post by Minka on Apr 8, 2009 10:44:01 GMT -5
Oh Krizzlebear it's great to hear again from you and I'm glad you're doing better. It's just terrbile what you're going thru  I'm sending some good vibes to you darling  |
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Post by gurlnlifemagazine on Apr 8, 2009 19:59:30 GMT -5
You're a machine. Litterally But I'm so, so, so glad you're doing better honey. Thanks for keeping us updated. |
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Post by Yuliya on Apr 8, 2009 20:12:20 GMT -5
Aw, I'm glad things are starting to get better!! |
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Post by idlewild on Apr 9, 2009 13:33:55 GMT -5
Lifehouse and Jack's Mannequin shows lining up for you, I'm glad you're doing much better :]
The iron infusion that you're getting, it sounds a bit like the Thalassaemia blood transfusion that would require a desferal injection every day/night. I did a research/presentation once regarding Thalassaemia and I had my fair share of helping kids out with dialysis, blood transfusions etc. It's never easy for them. You're certainly one tough cookie to go through that every day. Keep it up, love :]
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Post by savemeimdtba on Apr 10, 2009 10:34:33 GMT -5
No, it wasn't a blood transfusion. It was just straight iron (black looking stuff) through an IV once a week for three weeks. I haven't had to get a blood transfusion yet... and I Hope I never will.
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. I'd also like to know if anybody has an HD copy of Lifehouse at Pinkpop 2003. BY far their best concert ever
Apr 21, 2018 16:35:38 GMT -5
. I'd also like to know if anybody has an HD copy of Lifehouse at Pinkpop 2003. BY far their best concert ever
Apr 21, 2018 16:35:38 GMT -5
